Thursday, October 02, 2008

Pharma Dollars (Pounds, Euros) are Grassroots Seeds

I am beginning to believe that in countries like the UK, where direct-to-consumer (DTC) advertising is not permitted, pharmaceutical companies have used the bundles of dough they save by not advertising on the tellie to manipulate public opinion in other, more creative and consumer-centric ways. Such as creating and funding so-called "grassroot" patient organizations that lobby and promote on behalf of their donors.

The most recent example of this is the attacks by patient groups on the National Institute for Clinical Excellence (Nice) over decisions to restrict access to drugs on UK's National Health Service (NHS) formulary (NHS is like Medicare in the US, except it covers all UK citizens). The rising tide of protest over the refusal by the NHS to provide expensive drugs for cancer and other conditions is being funded by the pharmaceutical industry, an investigation by The Independent has revealed (see "Drug firms bankroll attacks on NHS"):
"Patient groups that have been among the most vocal in spearheading attacks on the National Institute for Clinical Excellence (Nice) over decisions to restrict access to drugs on the NHS depend for up to half of their income on drug companies, but details are often undisclosed.

"The growing clamour over decisions by Nice to ban access to certain drugs has outraged patients and the public, and undermined confidence in the NHS.

"Protests have been launched by charities including the National Kidney Federation, the Arthritis and Musculoskeletal Alliance, the National Rheumatoid Arthritis Society, Beating Bowel Cancer, the Royal National Institute for the Blind and the Alzheimer's Society. All of these charities received sums of up to six figures from drug companies in 2007.

"The extent of the drug companies' support for the smaller charities has led to criticisms that supposedly grassroots patient organisations are puppets of the pharmaceutical industry, being used to bludgeon Nice into making the drugs available on the health service. A positive decision by Nice on a drug not only guarantees sales to the NHS but can influence global markets worth billions of pounds.

"Yet none of the charities named has criticised the high prices charged by the pharmaceutical companies for their products in their recent campaigns."
Some time ago, I pointed out that the Restless Leg Syndrome (RLS) Foundation -- a US patient organization -- has very close ties to GSK -- a UK-based company that markets ReQuip for treatment of (RLS). In fact, I believe that the RLS Foundation was established by GSK. Here are some interesting factoids that support my thesis (see "Restless Pharma Marketing", for more details):
  • GSK is a Gold Corporate Sponsor of the RLS Foundation, which means GSK has given the foundation a good chunk of change;
  • at least one member of the Foundation's Medical Advisory Board has financial ties to a pharmaceutical company (GSK) with a treatment for RLS;
  • the PR activity of the organization seems to have picked up right when that company's drug hit (ReQuip) the market;
  • the first RLS Foundation Science Award went to Ronald L. Krall, MD, Senior VP of Worldwide Development at GSK;
  • Dr. Richard Allen, a member of the RLS Foundation's Medical Advisory Board, had the "pleasure" of "collaborating" with GSK to do studies supporting the data on the prevalence of RLS in the US and in Europe;
  • The color scheme of the RLS Foundation's Web site matches that of the Requip product site.
I guess pharma donations of "up to six figures" -- hundreds of thousands of dollars -- to UK or US "grassroots" patient groups are small peanuts compared to the 9-10 figure sums spent on TV DTC ads. But 6 figures here and 6 figures there, and pretty soon we're talking 7 to 8 figures, right? And six figures worth of advocacy from a targeted patient group is at least ten times more effective than the same amount wasted on DTC ads (see "Is DTC Bankrupting Pharma?").

Yet, all this is insignificant when compared to the 12 figures -- $700,000,000,000! -- that the US government is robbing from the poor to pay the rich.

P.S. Patient groups and healthcare charities whose existence and good work relies on donations from individuals and organisations have denied that they are in any way obliged to fight the pharmaceutical industry’s corner in return for financial support. (see "Charities not in the pocket of pharma").

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