I have noted previously that many of the pharma health apps I have reviewed do not include privacy policies (see, for example, "Be Aware of What's Behind a Pharma Mobile App: Disclaimers Only Tell Part of the Story"). In fact, some pharma companies may be among the 100 companies that California's attorney general, Kamala D. Harris, sent letters to in October, giving them 30 days to respond or make their privacy policies accessible in their apps.
"While California is unique in applying its privacy law to apps," said the WSJ article, "Ms. Harris has said she hopes to use the state's influence in the technology industry to benefit users nationally." The article notes that "even as privacy policies on websites have become commonplace, many of the most-downloaded mobile apps don't have them."
In my Regulation of Pharma Mobile Medical Apps Survey, I ask respondents whether or not they agree with this statement (among others):
"If an app collects personal information, it should include a privacy policy that explains how such data is protected (security), who owns the data, how users can access the data, where data is stored (on device or on remote web site) and instructions for opting out of data collection."The survey also asks opinions regarding the FDA regulation of pharma apps, self-regulation by the industry, third-party certification, testing of algorithms, etc.
I won't reveal the results until I collect more responses -- you can view a de-identified summary of the results after taking the survey yourself (click here). Thanks for your input.
A rare case to be heard. I wonder what's the result.
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