tag:blogger.com,1999:blog-8550428.post7664046960962385821..comments2024-03-27T01:34:23.434-04:00Comments on Pharma Marketing Blog: Disgruntled Patient Shuts Down sanofi-aventis Facebook PageVladhttp://www.blogger.com/profile/04114063498108633047noreply@blogger.comBlogger36125tag:blogger.com,1999:blog-8550428.post-43283268811645309772015-02-03T15:45:23.745-05:002015-02-03T15:45:23.745-05:00I must be missing something here but what I do not...I must be missing something here but what I do not understand is why attack Sanofi's page when the page allowed comments from a person who could post notice for others about problems she encountered with a Sanofi drug?<br /><br />Also, Sanofi have other drugs and I presume that other people would want to know about those issues (for better or worse).<br /><br />It seems to me that this person is very angry and so self absorbed within her anger that she can justify her actions no matter what those actions may mean to others.<br /><br />Very sad, indeed...Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8550428.post-34057392060653304582012-03-21T09:09:24.201-04:002012-03-21T09:09:24.201-04:00Reallly this experience for you might be very terr...Reallly this experience for you might be very terrible on FB, facebook never allow pharmaceutical site after a limit. so that maihgt be the reason of deleting all the post. <br />http://www.linkedin.com/company/play-games24x7-private-limitedGames24x7https://www.blogger.com/profile/03370160711102314795noreply@blogger.comtag:blogger.com,1999:blog-8550428.post-55356285613153710032011-07-19T16:13:29.654-04:002011-07-19T16:13:29.654-04:00Well, I would also say she gave Sanovi a wake-up c...Well, I would also say she gave Sanovi a wake-up call that a presence on FB was not going to be the same experience as the non-interactive commercials on TV and in magazines where they can go unchallenged.deadbeat revolutionhttp://deadbeatrevolution.info/noreply@blogger.comtag:blogger.com,1999:blog-8550428.post-64464108888252453142011-06-10T09:48:51.250-04:002011-06-10T09:48:51.250-04:00Well, I would also say she gave Sanovi a wake-up c...Well, I would also say she gave Sanovi a wake-up call that a presence on FB was not going to be the same experience as the non-interactive commercials on TV and in magazines where they can go unchallenged,Thank. <br /><a href="http://www.isdaleconstruction.com/remodeling.html" rel="nofollow">Austin Remodeling Company</a>manhttps://www.blogger.com/profile/03713434802946908005noreply@blogger.comtag:blogger.com,1999:blog-8550428.post-28013386849618536902011-05-23T06:16:41.731-04:002011-05-23T06:16:41.731-04:00I agree with your Opinion, As Facebook is not a go...I agree with your Opinion, As Facebook is not a good place for pharmacology site's marketing, As you mentioned the hair loss case. So i appreciate your effort.Sleepwear Womenhttp://www.lapeches.com/noreply@blogger.comtag:blogger.com,1999:blog-8550428.post-38935388202513594212011-03-22T15:20:09.701-04:002011-03-22T15:20:09.701-04:00I think that : It's like you vilified someone ...I think that : It's like you vilified someone who saved you from falling off a cliff, then vehemently attack them because they accidentally tore your watch off in the process of saving you. I have read this.www.wartrol.comhttp://mhlnk.com/ED1C2716noreply@blogger.comtag:blogger.com,1999:blog-8550428.post-20809360275074518412011-03-01T06:00:13.294-05:002011-03-01T06:00:13.294-05:00There are and were equally effective drugs at the ...There are and were equally effective drugs at the time of the treatment that do not have the side effect of permanent hair loss. Few oncologist were not aware of the side effect at the time either.Online Pharmacyhttp://www.emedoutlet.comnoreply@blogger.comtag:blogger.com,1999:blog-8550428.post-38091704962634972962011-02-26T09:58:30.951-05:002011-02-26T09:58:30.951-05:00Well, I would also say she gave Sanovi a wake-up c...Well, I would also say she gave Sanovi a wake-up call that a presence on FB was not going to be the same experience as the non-interactive commercials on TV and in magazines where they can go unchallenged, thanx.Okmulgee Lawyerhttp://www.888debtline.comnoreply@blogger.comtag:blogger.com,1999:blog-8550428.post-69494503923245598142010-10-21T02:25:27.548-04:002010-10-21T02:25:27.548-04:00As for being proud of shutting down Sanofi-Aventis...As for being proud of shutting down Sanofi-Aventis, it is a sad day for the advances we were making in Pharmaceutical Social Media.<br />I was hoping for them that the new CEO would change this culture but I guess it takes a while to percolate through the ranks.online generic viagrahttp://www.raymeds.com/noreply@blogger.comtag:blogger.com,1999:blog-8550428.post-14176451207345312412010-10-04T17:53:29.657-04:002010-10-04T17:53:29.657-04:00Hi John,
DO you (or any of your readers) know if ...Hi John,<br /><br />DO you (or any of your readers) know if this type of situation ever happened to another large pharma company? It seems odd that only s-a would need to deal with something like this...<br /><br />I'm doing some research on the weight of a consumers voice in social media outlets, specifically in pharma social media, and if this has ever happened to another company, it would help to know it. Thanks!Arihttps://www.blogger.com/profile/18399483189032886709noreply@blogger.comtag:blogger.com,1999:blog-8550428.post-51301328577449125212010-08-16T14:44:47.955-04:002010-08-16T14:44:47.955-04:00It's hard to believe that a huge company decid...It's hard to believe that a huge company decided to enter Social Media - which is about conversations - without the plan how to deal with different situations. <br />Sanofi-Aventis had a chance to gain trust with their Facebook page if they reacted showing that they respect the negative opinion and they care for the patient.<br />It's very interesting to analyse the report cited by eMarketer http://www.emarketer.com/Articles/Print.aspx?1007863 which shows the most important aspects of gaining trust within SM - not surprisingly the most important one is the open communication i.e. allowing both positive & negative comments; of course the latter ones migh be moderated if inappropriate, but never censoredMirek Polyniakhttp://www.linkedin.com/in/mirponoreply@blogger.comtag:blogger.com,1999:blog-8550428.post-80427195577567795602010-05-10T15:42:42.694-04:002010-05-10T15:42:42.694-04:00Anyone who thinks if Shirley had not confronted Sa...Anyone who thinks if Shirley had not confronted Sanofi they would willingly be more transparent about their drugs, has her/his head stuck in the sand. Let's face it, any pharmaceutical company joining FB either lives in a dream world or is just plain dull-witted if they thought this would not be a welcome mat for people's issues with their drugs. <br /><br /> I think Shirley did accomplish something here. More people heard her than had before and are talking about it. I would also say she gave Sanovi a wake-up call that a presence on FB was not going to be the same experience as the non-interactive commercials on TV and in magazines where they can go unchallenged. <br /><br /> I suggest that those who criticize Shirley first read the drug monograph before assuming that she is complaining about something she should have expected. It's inappropriate to assume that other people's experiences mirror your own.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8550428.post-87801125476816495882010-03-31T09:10:56.122-04:002010-03-31T09:10:56.122-04:00Discussion Tab on Voices still contains some negat...Discussion Tab on Voices still contains some negative posts from an hour ago (we are 3/31/10 @ 9 AM), even though Sanofi posted a message not to do this on 3/26/10Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8550428.post-24276925676588735552010-03-31T08:45:59.685-04:002010-03-31T08:45:59.685-04:00Asi como se hace la analogia de la lucha del quijo...Asi como se hace la analogia de la lucha del quijote contra los molinos de viento, de Cervantes, podiamos decir que decidir subir un sitio es como Shakesperae diria ser o no ser la equivalesncia escuchar o no escuchar, asi es el internet.Carlos Escalantehttp://www.pen.com.mxnoreply@blogger.comtag:blogger.com,1999:blog-8550428.post-40477346953129940382010-03-17T11:03:47.424-04:002010-03-17T11:03:47.424-04:00ARRGG typos:
there = their
Acomplia, Rimonabant ...ARRGG typos: <br />there = their <br />Acomplia, Rimonabant = Acomplia/RimonabantAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-8550428.post-8956037767067323252010-03-17T08:22:24.031-04:002010-03-17T08:22:24.031-04:00Having worked for S-A I am not surprised that they...Having worked for S-A I am not surprised that they do not like negative exposure about drug side effects and that there response to an attack is to shut down their site... Ketek, Acomplia, Rimonabant, now taxotere. This is not a company that enjoys openness, even within the organization. I was hoping for them that the new CEO would change this culture but I guess it takes a while to percolate through the ranks. Now they have well and truly shot themselves in the foot. Why don't they simply address the question honestly and with appropriate data? <br /><br />From what I can see on the FDA website (http://www.accessdata.fda.gov/drugsatfda_docs/label/2006/020449s036lbl.pdf) alopecia as a side effect ranges from 56% of patients when used as a monotherapy up to 97% in combined therapies though it does not say whether this is temporary or not. There is one table with "grade 3" alopecia at less than 1% but I have no idea what this grade means? Checking the Meddra terminology there is no term for permanent alopecia so there can be no post marketing reporting of this condition in the USA. Perhaps this should be added to the MedDra terminology? <br /><br />In the end there are people who suffer serious side effects from drugs. It is unfortunately unavoidable due to the complexity of the human immune system and physiology. Adverse drug reactions can kill or permanently disfigure but usually it is pretty rare. Even common treatments like acetominophen kill a certain number of people each year. Shirley, I am sorry you suffered from this it is a personal tragedy but the drug has also helped many more people than it has permanently scarred. Until hard data is available it is very difficult to know how many people the drug affects this way. Ask yourself this question: At what % of patients suffering these side effects would you have decided not to take the drug? 0.5%? 5%? 10%? Even if you had the data would it have made a difference in your decision to take the drug at the time you were diagnosed with cancer?Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8550428.post-82324344197117486472010-03-16T15:22:18.379-04:002010-03-16T15:22:18.379-04:00Shirley's words and her actions do not match u...Shirley's words and her actions do not match up. What is her goal by doing this? She says it's to make s-a stop being so silent...that they will come out with all of this info to show how they wronged her.<br /><br />Well, if that's the case, Shirley should realize that her actions is creating the EXACT opposite of what she supposedly wants. Shirley has mentioned shutting down other S-A sites...she seems to treat it as a badge of honor. How will a pharma company ever OPEN UP when you try to SHUT THEM DOWN? It's an oxymoron...you want them to start being more open and honest...but you try to accomplish it by shutting these lines of communication down.<br /><br />There is no doubt that Shirley has a right to be angry, but the method in which she has done so really is chipping away at her credibility. People who want to bring upon change bring forwards solutions...people who want attention, money or some self-serving agenda try to relish in the problem. Whenever someone brings up the fact the drug SAVED HER LIFE, it's quickly thrown to the side. I, for one, would rather be alive with limited hair than dead with a full head of locks.<br /><br />It's like you vilified someone who saved you from falling off a cliff, then vehemently attack them because they accidentally tore your watch off in the process of saving you.<br /><br />Shirley has yet to bring forwards a smoking gun, she has claimed in other areas her goal is to "terrorize" S-A. Why would you expect S-A to work with you? Is "terrorizing" a mature, productive way to bring about change? I don't think so.<br /><br />A wonderful opportunity to create some good nullified by a self-serving hidden agenda. Personally, I think she's after lotsa $$$, but if she had a case, I think there'd be a lawsuit by now.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8550428.post-822971841758919852010-03-16T14:33:26.516-04:002010-03-16T14:33:26.516-04:00ps - i only used Ann Adams when they blocked my re...ps - i only used Ann Adams when they blocked my real name and couldnt post. I seem to be able to use it today so they are letting me have a little say on their comments at the moment.shirleyhttps://www.blogger.com/profile/11968251393129964024noreply@blogger.comtag:blogger.com,1999:blog-8550428.post-84585480937954690932010-03-16T14:31:54.814-04:002010-03-16T14:31:54.814-04:00And still no mention of the common and frequent si...And still no mention of the common and frequent side effect of permanent alopecia !!!! <br />When i asked them for wigs they supposidly told my oncologist that i was the 3rd or 4th women in the world for thsi to happend too. If the side effect wasnt bad enough they were trying to make me believe i was some kind of freak too!<br />I agree totaly, they wouldnt have listened to what i was telling them in my ignored letters and emails.<br />I bet someone somewhere is listening now though.shirleyhttps://www.blogger.com/profile/11968251393129964024noreply@blogger.comtag:blogger.com,1999:blog-8550428.post-1773633886195790582010-03-16T13:59:57.368-04:002010-03-16T13:59:57.368-04:00http://money.ninemsn.com.au/article.aspx?id=102793...http://money.ninemsn.com.au/article.aspx?id=1027933<br /><br /><br /><br />"<i>Australia Leads the World in Funding Treatment for Early-stage Breast Cancer<br /><br />- <b>Australia will be the first country in the world to fund Taxotere</b> in combination with cyclophosphamide for women with early-stage breast cancer,* as of 1 April[1] -<br /><br />Australia - 16 March 2010 - Sanofi-aventis announced today that all Australian women* will be able to access government funded Taxotere (docetaxel) in combination with cyclophosphamide,[1] a chemotherapy combination shown to benefit women's chances of surviving early-stage breast cancer.[2],[3] This follows a government decision to include Taxotere in combination with cyclophosphamide for this group of women on the Pharmaceutical Benefits Scheme (PBS) as of 1 April 2010."</i><br /><br />"Like all other chemotherapy medications that treat cancer, Taxotere may have side effects. Common side effects may include infections, fluid retention, muscle pain or tenderness, joint pain, hair loss and tiredness.[5]<br /><br />"Not all chemotherapy treatments are suitable for everyone, and different treatments affect individual women in different ways. It is important that women who are commencing chemotherapy treatment discuss the potential side effects and how these can be managed with their doctor," said Dr Chan."<br /><br />My reaction to all of this, is to focus on the patient informed consent via the doctor treatment team.<br /><br />1. Was the patient well-informed via all treatment team members, told all risks and possible side effects?<br /><br />2. If there is question of ethics and drug promotion by S-A, then someone needs to research fine print details of the company and it's marketing tactics.<br /><br />Gaining a country government deal for the drug surely does reflect an aggressive drug promotion.<br /><br />I am curious, with regard to Shirley...your blog using the name 'Ann Adams', should be changed to your real name, as a patient advocate you need to gain credibility and it makes it easier when the name matches up with the story.<br /><br />As far as wanting S-A to fund wigs, there is no way to do something that simple in this legal world, unless brought into a legal arena, a large drug company doesn't do things like that, sorry to say, I'd be doubtful if they listened at all until served with a legal action.<br /><br />One thing I do not have is any sympathy for large corportations having to tweak a social networking page because a patient left comments there they didn't like.<br /><br />I have compassion for human beings, their plights, but come on, let's stop fueling this fire about poor S-A "suffering" a FB snafu. lol seriously sounds ridiculous.<br /><br />Interesting comments here! <br /><br />btw I'm having fun tracking this myself:<br />SANOFI TECHNIQUES <br />Domain SANOFI-SYNTHELABO.COM <br />City - <br />Region - <br />Country FRANCE<br /><br />I've left out the IP address, but interesting how they are interested in my dog's blog now!Stephanynoreply@blogger.comtag:blogger.com,1999:blog-8550428.post-17723186168881086392010-03-16T03:22:44.181-04:002010-03-16T03:22:44.181-04:00Dont you worry about it Pharm Aid, the evidence is...Dont you worry about it Pharm Aid, the evidence is in all the studies that have been carried out, all the hundreds of people that are in these studies, in all the pateints that havent had their hair return, the REAL % that puts it into the classification of 'common and frequent' but SA do not think they have to declare it this even though the stats says its common and frequent. Why do they omit it from their product info and why do they tell everyone that asks about it thats its VERY RARE when its its not less than 0.01%.<br />They say they are 'unable' to reveal how many reported cases there has been? Why is that then? If its 'very rare' surely they would like to shut me up by telling me. Yes, i have it all in print.<br />I want the TRUE figures revealed, i want it on their product info and on their websites, i want them to admit that it doesn happen in 6% (or what the true % is), i want it labled as a common and frequent adverse side effect. I want every oncologist to know so they can tell their next pateint suffering with breast cancer that no their hair might never return and to be able to give them the %.<br />I want SA to stop telling individual patients that contact them that'its extremely rare' or 'you are only the 3rd or 4th person in the world this has happened to' which was what they said to my oncologist when he reported me- this is what he told me at the time.<br />Its all about patients rights, the right to say yes or no to a treatment, to make your own risk assesment. I can back up everything i have said pharm aid make no mistake. I have it all, even copies of everything in a friends house just to be on the safe side.<br />Why do you think they are silent? they have no idea what to say to me. Unless they decide to sue me for something, i dont have any money so they can if they want, i would then have my day in court.<br />Women that had a good prognosis, are being kept in the dark about a drug that is disfiguring them, permanently, its having a devasting effect on their lives when they could have had the CHOICE of another drug but unfornatly not one that was made by SA.<br />So Pharm aid, i have no idea why you think its a pity my life was saved (it could of been the FEC but you say you KNOW it was the taxotere) and i was deeply offended by your posting. Why you can think that about someone that you have never even met is beyond me.shirleyhttps://www.blogger.com/profile/11968251393129964024noreply@blogger.comtag:blogger.com,1999:blog-8550428.post-69129705415535213632010-03-15T19:10:19.160-04:002010-03-15T19:10:19.160-04:00You'll have to ask Shirley about the evidence....You'll have to ask Shirley about the evidence. She's the one making the accusations, although maybe some investigative reporters should look into it.PharmaGuyhttps://www.blogger.com/profile/10211557578124130640noreply@blogger.comtag:blogger.com,1999:blog-8550428.post-32019718179445094732010-03-15T18:09:03.838-04:002010-03-15T18:09:03.838-04:00And the "evidence" that the data was &qu...And the "evidence" that the data was "hidden" is exactly where? Surely you have some fact to prove your claims of criminal behavior.<br /><br />Feel free to post it on your website. We're all anxious to see the smoking gun...Pharm Aidhttp://pharm-aid.blogspot.comnoreply@blogger.comtag:blogger.com,1999:blog-8550428.post-16621429528456936752010-03-15T15:24:44.537-04:002010-03-15T15:24:44.537-04:00Shirley, Pharm Aid, et al,
OK, I've allowed &...Shirley, Pharm Aid, et al,<br /><br />OK, I've allowed "gutter," "ignorance," and "idiot" to be posted in comments. That will be all the name calling I will allow. Thanks.PharmaGuyhttps://www.blogger.com/profile/10211557578124130640noreply@blogger.comtag:blogger.com,1999:blog-8550428.post-91803703333080587382010-03-15T15:19:34.426-04:002010-03-15T15:19:34.426-04:00Pharm Aid -so you know taxotere saved my life do y...Pharm Aid -so you know taxotere saved my life do you? you are a clever LITTLE man arent you - even my oncologist doesnt know that.<br />You think that 'Shirley's point is that it's better to have your hair and die than lose your hair and live.'means the same as 'basicly i want SA to stop hushing up data, give out the info on adverse side effects so patients can rightfully make their own risk assesment' so your another one that doesnt actually reads anything.<br />You think its a pity my life was saved....WOW, and you are 'too am embarassed beyond belief' dont you think your are being a bit of a drama queen dear.<br />As for the gutter -with your remarks do you honestly expect anyone to take you seriously.<br />I think you speak with a fork tongue. In your own blog you say patients should take control over their own treatment. Hummmmmm how can anyone do that if the truth/data is being hidden from them you idiot.<br />Derrrrrrrrrrrshirleyhttps://www.blogger.com/profile/11968251393129964024noreply@blogger.com